FORMER COURSES : 2001


The first Orphan Europe Academy workshop

Ranica, Italy

The purpose of the workshop was to study factor H in patients with familial and recurrent HUS/TTP. Half of the patients and relatives participated in the study during the two days clinical and research activities.
Registration closed


General Comments



  • "Brilliant idea to have a course like this"

  • "Excellent level of presentations, very good speakers"

  • "More useful than a congress"

  • "Good discussion sessions"

  • "Good choice of thematology"


Why did you choose the course ?



  • "To have a systematic overview about metabolic diseases"

  • "To broaden knowledge on metabolic diseases"

  • "To learn about practical things (laboratory diagnosis, diet...)"


also because...



  • "we leave a lot of children with metabolic diseases without diagnostic"

  • "This course is not offered anywhere"

  • "High quality of Professors"

  • "Opportunity to meet best professionals in the field, to hear the experts"

  • "Few metabolic training for advanced amateur"

 

The first Orphan Europe Academy course on inborn metabolic diseases

Heidelberg, Germany

The programme was a good balance between lectures given by renowned international experts and workshops in the laboratory.
Registration closed


General Comments



  • "Brilliant idea to have a course like this"

  • "Excellent level of presentations, very good speakers"

  • "More useful than a congress"

  • "Good discussion sessions"

  • "Good choice of thematology"


Why did you choose the course ?




  • "To have a systematic overview about metabolic diseases"

  • "To broaden knowledge on metabolic diseases"

  • "To learn about practical things (laboratory diagnosis, diet...)"


also because...




  • "we leave a lot of children with metabolic diseases without diagnostic"

  • "This course is not offered anywhere"

  • "High quality of Professors"

  • "Opportunity to meet best professionals in the field, to hear the experts"

  • "Few metabolic training for advanced amateur"

 

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